Wednesday, January 15, 2014


Month 12 the most denial filled bitter sweet month so far. Going into this I was so sure that I would be done within the year. I was healing so well and more and more skin was clear, then BAM neck is oozing and cracking, arms are red sleeves again, stomach is patchy again, and legs are getting worse. My neck was the worst the ooze smell was unbearable and I had no mobility whatsoever. At home I tied a silky robe around my neck and prayed that it would not stick and have to be ripped off and at work I moved like a robot, unable to move my head or extend my arms. Then comes Dec 9, my one year anniversary which was spend being depressed and discouraged. I do not know what I would do without the kind words and support of the ITSAN community, their willingness to give encouragement over and over is what got me through the day.

11/28/13 Day 355 
Notice how I look awkward and creepy I'm this picture, that would be because we had just run a 5k and my skin was not happy about it. (Please ignore thre very classy orange sports bra showing through my shirt)

12/2/13 Day 359

12/3/13 Day 360

12/9/13 day 366 1 Year Topical steroid free!

Song of the week: "Skinny Love" cover by Gavin Mikhail. "Come on skinny love just last the year, pour a little salt, we were never here...Come on skinny love what happened here? Suckle on the hope in light brassieres my my my my my my my my, Sullen load is full slow on the spit. And I told you to be patient and I told you to be fine, and I told you to be balanced and I told you to be kind"