12.19.12 Day 11: Woke up with EXTREMELY swollen eyes and face. Face, neck, chest, and shoulders are very red (looks like a terrible sunburn). I am definitely a fan of the pure shea butter. If you rub it between your hands first, it goes on like butter with very little rubbing in needed, which is nice when your skin feels like it has gone through a meat grinder. I had my first bout of oozing today from my shoulders, neck, and back of ears. I woke up from a nap to find the shoulders of my t-shirt were
|The swelling in my eyes this morning|
PA: What is going on with your skin? You look miserable.
Me: I am miserable. I became addicted to topical steroids prescribed for eczema, they stopped working, and now I am going through the withdrawal.
PA: (totally disregarding that steroid withdrawal could be an option) Why did you stop taking steroids? What were you unhappy with?How would you feel about a steroid injection to get rid of this?
Me: (already frustrated because I have had trouble with her not listening in the past) NO STEROIDS. I am raw, oozy, uncomfortable, and sleep deprived because of the steroids. Don't you think that this could be happening because my body is healing from all of the damage the steroids did to me? It started right after stopping the steroids.
PA: No, you are obviously just having a horrible allergic reaction. Have you done allergy testing?
Me: Yes, I am not allergic to any food, I only have seasonal allergies.
PA: Oh...ok well I am going to test you for strep throat and do some blood work to see if you have valley fever. In the mean time take some antihistamines.
So my trip to the doctor was basically worthless, cost me $15, and I still have to go back for my well woman.
12.20.12 Day 12: Much less swelling today. My face is getting dry again, so is the back of my neck, but only a little dryer on my shoulders. The skin on my back is feeling painful and I have to be careful with scratching because the skin breaks VERY easily. I am feeling very tired. Mornings are slow going, I wake up tight, dry and uncomfortable and need to get immediately into the bath. I then take forever to lotion up, wait for it to soak in a little, then get dressed. At this point I am tired again. I also take a few more baths or showers during the day when I get uncomfortable. Needless to say, I'm not getting much done these days.
12.21.12 Day 13: Woke up at 3:30/4am feeling miserable. Realized that sleep was not going to be an option so I watched a movie and laid back down until I absolutely had to get up for work at 11:45. I am tired of being tired and unproductive. Felt a little light headed and nauseous getting out of the shower this morning, but I think it is just form the anti depressant from yesterday and my empty stomach. Face looked good this morning but became much redder and hotter throughout the day. Swelling was a million times better than yesterday. Back of neck and ears are oozy and shoulders feel raw. I was unable to wear a bra today because the straps hurt.
|Rash has spread to one full area|
|Stomach is covered in red dots|
12.22.12 Day 14: Today was Ethan's birthday so I needed to go out. Overall I felt pretty good, I just had to get straight back into the bath when we got home from dinner and again after the bar. I have been taking a lot of extra time to do my hair these days in an attempt to make it look like I do take care of myself. Luckily when we went out to the bars the only skin showing just looked like an awful sunburn. I also carried a tub of lotion in my purse to reapply throughout the night.
|Feeling very raw|
"He sits in his basement from midnight 'til four painting pictures that nobody sees from his days in the war. The canvas is painted bright red, red. He heats up the shower, he paces the hall. He'll scrub for an hour or more but he won't get it all...The hill still left to climb is just so high, and I'm so tired. Come on look me in my bloodshot eyes, the clouds are all on fire." Jack's Mannequin - Bloodshot